Wednesday, October 31, 2012

Thursday, October 25, 2012

Thursday, October 18, 2012

Medical Update

Gabe had a sleep study last month.  We went to the doctor this week to review the results.  His sleep apnea is still mild at 2.5 episodes of pausing per hour (down from 4.5 last year).  His oxygen levels never drop significantly, so this is a good improvement.  His airway is getting bigger and he is getting good quality sleep.  We don't have to have another sleep study for 18 months. 
We went to GI last week. Gabe is now close to 27lbs.  He is maintining his weight since dropping all tube feeds last spring and continues to be at the 50% on the Down Syndrome weight curve.  His height is 70% on the curve.  He is drinking anywhere from 10-20oz by mouth a day.  The fluid goal is about 25oz/day by mouth in order to get the tube out.  We will be working on drinking more this winter and in the spring will be doing 3-5 day trials of nothing through the tube to see if Gabe is able to keep up his hydration independently.  The GI doc sounded pretty optimistic of the tube coming out by the summer.  It's all in Gabe's time, but it's so reassuring that the end is in site. 
Gabe has a cardiology appointment next month.  They will do an EKG, but are not going to ECHO since his repair is so good they can't even hear a murmur.
Opthalmology appointment is scheduled for January, but so far, Gabe' eyesight is good.

Alyssa is sick with the pukes...again.  Poor girl.

Monday, October 15, 2012

Fun filled weekend

We had a fun weekend with the kids. They both had swim class on Saturday. We then went to kinman farms pumpkin patch. Gabe really loved the animals this year. Alyssa is on the brink of walking so she is just all over the place. We were all worn out afterwards. It was a fun day.

Monday, October 1, 2012

It's Down Syndrome Awareness month!

So what have we been up to lately you ask? Preschool, sleep study, illness x 3. I'll update with more details later this week, but for now...happy October.