Saturday, October 26, 2013

October is Down Syndrome Awareness Month.  I've thought about what I should talk about when it comes to Down Syndrome...should I focus on medical challenges, should I focus on therapy, should I focus on inclusion, should I focus on phases of grief ?...I'm not sure.  I think I'll focus on something that has been coming up more recent with Gabe as he gets older.  I noticed alot this summer that Gabe gets frustrated with himself when he can't do something.  He is quieter around other kids.  He cries because he's embarassed if he falls down or can't keep up.  He is noticing differences.  If he is noticing these differences, I'm sure friends and classmates are noticing these differences as well.  so...how do you explain Down Syndrome to a preschooler?  I think the key is to make it simple, and don't be afraid to ask questions.  Most kids are satisfied with simple answers and don't think much of differences...as long as adults don't make a huge deal out of those differences.  Here are some examples:

Why can't Gabe jump high like me or run as fast?  Gabe's muscles have to work alittle harder than your's to move.  He's learning how to do all that stuff.  You can teach him!  Show him how high you can jump!  Look, Gabe's trying to do it too!  You're a good teacher!  Good job Gabe.

Why can't Gabe talk very well?  Sometimes it takes Gabe awhile to make his mouth move to say what he wants to say.  It's like his mouth is full of marshmellows.  Be patient and wait for him to talk.  Maybe we could all sing a song together.

Just some ideas....there are books as well.  I haven't read "We'll Paint the Octopus Red" or "My Friend Has Down Syndrome", but I've heard good things.  We are very fortunate that our local Down Syndrome Association has a School Age Matters Program.  A leader from this group will go into your child's classroom and explain Down Syndrome to their classmates.  They even have the kids wear mittens and try to write their name to give them an idea of fine motor delay.  I will definitely use this resource next year when Gabe starts Kindergarten. 
We are so fortunate to have supportive friends and family who recognize all of Gabe's similarities and strengths.   

Sunday, September 8, 2013

Great weekend

We had a great weekend. The Buddy walk was this past Saturday. The weather couldn't have been better. The greater Cincinnati area has the largest Buddy walk in the nation. There were 10,000 people there estimated. It's always heartwarming to see the support all around us. Gabe's favorite parts were the dogs and the park. Our team raised about $2000. Special thanks to everyone who donated, walked, or both to show their support for Gabe and our family.
Today we went to a birthday party. It was at a roller skating rink and they also had bounce houses there. Gabe did really well in the inflatable bounce house. He was laughing and having fun. He couldn't stand up very well, but was still having a blast. Rollerskating with difficult for both of them but they actually liked being pulled by us. We had a great weekend.
School is going well for Gabe so far. His teacher said that he tries to hide that he can stand up and walk around so well now because he still likes them helping him so much. He doesn't like people to know all that he can do because he's stubborn. He seems to be very happy lately, and likes the routine. He loves going to school, and I think it really helps keep him focused.
Alyssa is doing great. She talks up a storm. She's getting bigger every day. She loves daycare also. During dinner tonight, she turned to me and said "thank you for cooking Mama". She's got an attitude to her, but she's really a sweet girl.

Thursday, July 11, 2013

2 surgeries in 2 days

I'm wiped. On Tuesday, Alyssa got PE tubes placed. She's had about five ear infection since Christmas time, it was time to do something about it. She fought the anesthesia some, but did really well overall. Today, Gabe had PE tubes placed again due to fluid build up that was affecting his hearing, a bronchoscopy to measure his airway, an adenoidectomy, sealants on his teeth, and dental x-rays. Lots of small things all at once. Hopefully removing the adnoids will prevent him from being such a mouth breather, resolve any lingering sleep apnea issues, and help him drink from cup a little bit better. He did really well. Much better than I expected actually. I think I still have some post traumatic stress from the surgical waiting area. I'm glad it's over. Both kids are sleeping now. We're taking tomorrow as a recoup day. I'm exhausted.

Monday, July 8, 2013

Feeling nostalgic

Happy 4th birthday Gabe!
Busy week ahead. I'll post more soon.

Wednesday, July 3, 2013

Family pictures

Gabe 4 years, Alyssa 18 months. 


Tuesday, June 4, 2013

Summer Vacation

We just got back from Summer Vacation in Siesta Key.It was a nice relaxing time.  The beach is beautiful and very kid friendly.  Gaby and Alyssa were both champs on the plane.  The condo we rented was definitely not baby proofed, but luckily nothing got broken.  Gabe loved throwing sand at the waves and Alyssa loved chasing the birds and picking out shells to put in the bucket.  As pretty as everything was, it is always nice to come home.  Here are some of my favorite picks from the trip.