Doctor Doctor Give Me The News

It's been busy busy. Yesterday, Gabe had a follow up appoingment with the Pulmonologist to discuss his sleep apnea. We will be repeating a sleep study in January and then go back to the Pulmonologist to review the results and see if there are any changes and see again if the oxygen at night is helping him. From there, we will see if a CPAP mask fits him yet. They may also do a sedated sleep study in the future to see at what point in the throat area he is obstructing. Once the obstructive part of the apnea is treated, they'll be able to make sure there is no central apnea. Central apnea would mean there was something physiologically off with his brain making him pause his breathing when sleeping. Really hoping no central apnea. For now, he thinks it's just the obstructive apnea and we'll find out more info in January. He was very happy with how good he looked. Yesterday evening we met the Occupation Therapist and Developmental Coordinator who will be working with Gabe. We set goals for the next 6 months. We would like Gabe to be able to sit and play on his own while reaching for things and putting them in his mouth. We would like him to continue to cue and communicate. We would also like him to be able to eat some by mouth. They thought these were all achievalbe. Today we went to surgery follow up for the Gtube. Gabe got a Gtube button. yay! This means no more tube hanging from his belly. The little button is easily hidden with clothes. He can bathe and swim in it and it's hard for him to play (tug) with. I also had the surgeon look at his heart surgery scar. We've been doing dressing changes on the area b/c of the inflamed sutures. Even though the picture makes it look red, it actually looks really good and is scabbing over and he said we could stop doing dressing changes on it and just use soap and water. Gabe has been very cute and smiley. I can tell when he looks at us talking to him he is focusing so hard and learning from us.