What a busy week we've had. We went to GI on Friday and they confirmed that Gabe has dumping syndrome. Even though he still feels slightly clammy during feeds, they are happy with how he is doing and that the sweating has stopped when we give the feed over an hour. Hopefully he'll grow out of it one day. He also wants me to keep an eye on Gabe's constipation. I have to give him lots of water and juice thru his Gtube to make him poo everyday and if he doesn't I have to give him Milk of Magnesia...ick. He's been pretty backed up lately, so here's to hoping for a dirt diaper in the morning. The GI doc also commented on Gabe's liver being large. He said lots of kids with Down Syndrome have larger livers and Gabe's is pretty prominent and we will watch it. He didn't draw blood or act overly concerned, but of course I held on to it and am going to ask every doc who examines him what they think about the size. All and all, it was a good visit. His weight is back up to 50th % on the DS growth curve. They want to give him 3 good months of continued growth and they we'll adjust formula and feeds if need be.
The weekend was full of fun. Justin's sister got married. Gabe loves weddings...lots of stimulation and plenty of people to hold him. It's been so hot lately. It's suppose to cool off some this weekend...hopefully it will stay cooler for Gabe's birthday next week...more to come on that.
Michelle, he looks great! Sorry to hear about the dumping thing.
ReplyDeleteRegarding constipation... Micah didn't do nearly as well with MoM as he did with Miralax. Have you tried that with him?
BTW... Micah has definitely outgrown the constipation issue... we're on the other end of the spectrum now, but I think that's due in part to his gut being completely out of whack after the nasty April exposure to every antibiotic known to man.
he is looking more like you in these pix. :) SUPER CUTE!
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