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 Home. Gabe finally went to the bathroom a little bit yesterday afternoon so we got discharged late yesterday evening.  He was in a fair amount of pain when we got to the house because it was the most movement he’s done by far between getting out of the hospital and getting into our home. We got him tucked in just fine and he fell asleep immediately.  Today was focused on bowels and bladder. I’ve been on the phone with the nurse a lot today.  We have a plan going into the holiday weekend, which hopefully does not involve a re-admission. Hopefully his body cooperates and the bathroom stuff improves.

  From a mobility standpoint, he’s doing great! He’s going down and up the stairs with support. He’s been walking around just holding our hands lately. We’ve been doing some OT exercises with him to keep his neck and shoulder range of motion in a good spot. The surgery fixed the skeletal structure, but the muscles are still used to being slanted so he is still a bit lopsided. It will correct overtime as he gets used to new posture.  We are tracking lots of medication and Gabe is taking it like a champ. They were right when they compared it to having an infant. He really is a champ though. Once we get the bladder and bowel stuff under control, it’ll be a huge step forward.