Here I am crying out for mercy and calling out for Your help, so if You hear me I need a hero

Gabe is still in ICU. He has a feeding tube giving nutrition. He has a PICC line which is an IV catheter inserted near his heart to give him medicine. They have him on Captopril and Lasix. The valves in his heart are still leaking significantly. The more concerning issue continues to be his ventricles. The bottom half of his heart is not beating strong enough and this is something surgery would not correct. They won't even do the AV canal repair until his ventricles are working better. The medication they tried giving him was not really improving this function. The big question is why. All the doctors talked about him yesterday at a care conferenece and they all agreed that poor ventricular function to this extent is rare with AV canals and Down Syndrome. They think something else might be going on with the heart...something seperate causing poor ventricular function. They are going to draw a bunch of labs on Monday to look at all sorts of weird stuff to see if there is another diagnosis going on with the heart muscle itself. They may eventually do a cardiac cath or biopsy, but that's still a maybe. They will check another ECHO (ultrasound of the heart) next week to see if there are any improvements. Gabe looks pretty good and is still a cutie. He looks so good for having such a weak little heart. Thanks again for all the thoughts and prayers. I apologize for not answering my phone very often or returning calls. It's exhausting explaining everything and it's busy around here with lots of docs in and out. Justin and I are hangning in there. We've been sleeping at home since Gabe is stable and we're trying to take brakes from the hospital when Gabe is asleep and the doctors aren't coming in to talk to us in order to stay sane. We'll keep you posted on how everything goes.