We might go home tomorrow!

Gabe is currently off the mixer and on 100% oxygen at 1/4-1/8 a liter. They drew labs to check his Co2 last night before he went to bed and this morning when he woke up. This indicates how hard his lungs are working to breathe. They want the number to be below 50 optimally. He was 56.6 before sleeping and 50 after sleeping. While these numbers are not ideal and indicate some pulmonary issues related to his airway, it does mean that he is sleeping safetly at night on the oxygen. We are trying to ween him off oxygen during the day. Feeds are still going well. We will have to do continuous feeds for 2 weeks before they start giving him a window. We will follow up with surgery in 2 weeks. Home Health is coming today to go over the oxygen tank and portable oxygen and the feeding pump. They just did another ECHO to check on his ventricular function again and will be discussing when to do heart surgery tomorrow. He's still pulling alot with his lungs, but we will follow up with Pulmonary, have an outpatient sleep study on Oct.1, and address the tracheomalacia after heart surgery if needed. I can't wait to bring him home..even if it does make me slightly nervous. We need to feel like a normal family for a couple weeks before heart surgery. I don't have a camera right now, but I'll post pictures later.